The Who’s Who App has been designed for patients, and parents of patients, with Lysosomal Storage Disorders. The App aims to help patients and their parents along their treatment journeys by:
Outlining and describing the role of each of the Healthcare Professional Team Members who will play a part in the management of the healthcare of the patient
- Providing contact details for each Team Member specialty
- Providing a secure place to record the names and contact details of each specific Healthcare Professional that the patient will be seeing throughout their treatment journey
- Encouraging the patient/parent to record all relevant appointments with each Team Member, in the one place
- Tracking both past and future appointments
- Allowing patients/parents to export of all past and future appointments recorded in the App by Team Member specialty
- Facilitating the recording of notes